National Survey of Children with Special Health Care Needs (NSCSHCN)

Maintained/created by: SLAITS, Centers for Disease Control and Prevention (CDC)
Website: http://www.cdc.gov/nchs/slaits/cshcn.htm
Geographic unit of data: U.S. national, U.S. state

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Abstract:

Background

Users can download data pertaining to children with special health care needs. Topics include, but are not limited to: health insurance access, care coordination, and the medical home. The National Survey of Children with Special Health Care Needs (NS-CSHCN) is a SLAITS survey operated by the Centers for Disease Control and Prevention (CDC) and National Center for Health Statistics (NCHS) and is sponsored by the Maternal and Child Health Bureau and Department for Health and Human Services.Surveys were conducted in 2000-2002 and 2005-2007. NS-CHSHCN assesses the prevalence and impact of children with special health care needs in the United States and the District of Columbia. This survey explores topics including medical homes, adequate health insurance, access to needed services, care coordination and satisfaction with care for children with special health care needs.

Data Notes

Users can download the survey instrument, methodology report, summary tables, and codebook as PDF files. Users can download the public-access dataset into SAS statistical software. Users can view demographic information by race/ethnicity and family income. Interviews were conducted with parents of children with special health care needs under 18 years of age. During screening, health insurance interviews were conducted for children without special health care needs to estimate health care coverage for each state. For uninsured children and low-income households, parents were asked about their awareness of and experience with Medicaid and the State Children’s Health Insurance Program (SCHIP). Data for the first survey was collected between October 2000 and April 2002. Data for the second survey was collected between April 2005 and February 2007.