Maintained/created by: SLAITS, Centers for Disease Control and Prevention (CDC)
Geographic unit of data: U.S. national, U.S. state
Keywords: behavioral problem, career training, CDC, Centers for Disease Control and Prevention, CHAMP-VA, CHAMPUS, child, children, clinic, communication aid, communication device, counseling, dental care, developmental problem, disability, doctor's office, early intervention services, educational services, emergency room, emotional problem, genetic counseling, health care, health center, health insurance, healthcare, home health care, hospital, Indian Health Service, Medicaid, medical care, medical equipment, medical supplies, Medicare, MediGap Insurance, mental health, mental health care, mental illness, military care, mobility aid, Mobility Device, occupational therapy, physical therapy, prescription medicine, preventative care, private health insurance, professional care coordination, respite care, SCHIP, single service plan, SLAITS, Special Educational Services, special health care needs, specialist care, speech therapy, state, State Childrens Health Insurance Program, substance abuse treatment, Title 5, Title Five, Title V, TRICARE, vision care, vocational rehabilitation, vocational training, well-child visit
Users can download data pertaining to children with special health care needs. Topics include, but are not limited to: health insurance access, care coordination, and the medical home. The National Survey of Children with Special Health Care Needs (NS-CSHCN) is a SLAITS survey operated by the Centers for Disease Control and Prevention (CDC) and National Center for Health Statistics (NCHS) and is sponsored by the Maternal and Child Health Bureau and Department for Health and Human Services.Surveys were conducted in 2000-2002 and 2005-2007. NS-CHSHCN assesses the prevalence and impact of children with special health care needs in the United States and the District of Columbia. This survey explores topics including medical homes, adequate health insurance, access to needed services, care coordination and satisfaction with care for children with special health care needs.
Users can download the survey instrument, methodology report, summary tables, and codebook as PDF files. Users can download the public-access dataset into SAS statistical software. Users can view demographic information by race/ethnicity and family income. Interviews were conducted with parents of children with special health care needs under 18 years of age. During screening, health insurance interviews were conducted for children without special health care needs to estimate health care coverage for each state. For uninsured children and low-income households, parents were asked about their awareness of and experience with Medicaid and the State Children’s Health Insurance Program (SCHIP). Data for the first survey was collected between October 2000 and April 2002. Data for the second survey was collected between April 2005 and February 2007.